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Gathering information about your child’s cancer or blood disorder diagnosis is often helpful. Your doctors, social workers, and this website provides materials that may help while your child undergoes cancer or blood disorder treatment. The health care providers are your best resource. Other good sources of information are books and pamphlets. Your social worker can guide you to these reading materials.
Learning that your child has cancer or a blood disorder is overwhelming. Someone who has never experienced it before probably has little knowledge about childhood cancer or blood disorders.
Parents say that as time passes dealing with the cancer or blood disorder diagnosis becomes easier. Some parents believe this because they understand it better and because friends and family are lending their support. Talking to other families who have been dealing with a similar disease can also be a positive step. A strong support network for children and parents facing cancer and blood disorders spans the country, with local and national parents groups, support groups for children and their siblings, organizations that deal with education, and other branches.
The social workers can be a primary source of help. They can provide a good orientation to the clinic, are aware of special problems facing young patients and their families, provide information on how to get help from outside community agencies, and address many other nonmedical issues. Contact your social worker to identify resources that can be of great help to you.