Home » Rare Disease Research Hall of Fame Honors Dr. Ken McClain
Dr. Kenneth McClain, a pediatric oncologist and Clinical Director of the Histiocytosis Program at Texas Children’s Cancer Center, was elected into the Rare Disease Research Hall of Fame for his leadership in the research and treatment of children and adults with Langerhans Cell Histiocytosis (LCH), hemophagocytic lymphohistiocytosis (HLH), Rosai Dorfman Disease (RDD), Erdheim Chester Disease (ECD) and Juvenile Xanthogranuloma (JXG).
The honor was awarded as part of Rare Disease Day, an international advocacy day to bring widespread recognition of rare diseases as a global health challenge. The day is celebrated on the last day of February every year. McClain has devoted his life to research focused on the clinical and biologic aspects of LCH and all the other histiocytic diseases. He and his colleague Dr. Carl Allen have published some of the most cutting-edge research.
In addition to having grant support from the National Institutes of Health, McClain has raised considerable amounts of money for histiocytosis research by helping with fundraising events. One of the most successful was the BigFix for Histio in which he rode a fixed-gear bicycle across the country in 27 days with several others and raised $350,000. A leader in the Histiocyte Society for many years, McClain also was the USA principal investigator for the LCH-III trial.