Home » Carnegie hall welcomes patients and siblings with Purple Songs Songs Can Fly
Texas Children’s patients and siblings involved in the Purple Songs Can Fly program got a rare opportunity to perform a song at Carnegie Hall. Watch to see what the experience meant to each of them.
February 26, 2014
“Hope is like medicine, it helps you know you will survive.” Emily Freeman.
“When I was 18 months old I had cancer and my mom and my dad were here to support me. I had to be here for two years.” said Layla Borghese.
“Loss of hope is like losing a battle. It hurts you more than you know.” said Zach Tavlin.
“I was a dancer and I came to Texas Children’s in June of 2009. I was diagnosed with a cancerous brain tumor.” said Emily.
“Hope is like a diamond. It really keeps you strong.” said Morgan Fregia.
“I first came when I was twelve and I got these mysterious bruises during summer camp.” said Zachary. “So I came and they told me I had really low platelets. It’s called idiopathic thrombocytopenia but pretty much it’s like hemophilia, but less bad. It’s an autoimmune disorder.”
“Look to the skies and in every star lies hope.” said Rhett Fregia.
“My brother was diagnosed with acute lymphoblastic leukemia in September 2009.” said Morgan.
“Hope is everything. It is everywhere, in everyone.” said Layla.
“I felt a little nervous until I saw the nurses and how good they were.” said Rhett. “I just…I just never felt scared after that.”
“It was towards the beginning of the new year when one of the workers for the Purple Songs Can Fly walked into the clinic and was like ‘Hey do you want to write a song?’ I wrote the song for my little brother.” said Morgan. singing] I know the feeling/and how it felt/So I can’t say that you will be alright. “It was a pretty amazing experience the first time I met everyone.”Don;t worry about a thing.
I was actually in the clinic waiting for an appointment. Dream big, the curtains rise. “I was able to write and record my first song there. Being a former dancer it meant so much to me to get back on top.”said Emily. [singing] and now its time to dream big.”
“When I found out about it I was really, really excited. I do a lot of musical theater,” said Zach. [singing] There comes a time/Take them away to far off places/and magical spaces. “Singing outside the hospital so I knew the full extent of what that was and I thought Oh my Gosh ‘I get to do that and I’m 18!’ It was a really amazing experience. The day we arrived was my graduation ceremony at school, but I skipped that because I really wanted to do Carnegie Hall. I went there and it doesn’t hit you until you go i, and then you go in and it was…I was going to say epic…but it was really ornate and crazy, and oh my gosh, it was beautiful.” said Zach.
“Who would have thought that going through cancer would have gotten me there? That was just such a blessing.And to be with all the kids, and Anita [Kruse].” said Emily.
“It was really…the highlight of my life.” said Zach. “A lot of the kids will record their song and that is their recorded voice…and they might not make it. and that’s what the family has. I think that gift and to have the gift of that kind of escape… that’s a gift that can’t really be measured.”
[singing] What would it feel like to be free?/Open the door, strong as the sea. /What would you do/to feel the breeze on your face?/And what would you give to fly away?