About the Sickle Cell Program
The Sickle Cell Center at Texas Children’s Hematology Center offers comprehensive family-centered care for children with this complex blood disorder.
Our individualized course of treatment includes patient care, education, psychosocial support services, screening and counseling for children and their families. Serving over 1,000 children each year, our program is one of the largest in Texas. The Sickle Cell Program offers the latest treatments including hydroxyurea, transfusions and stem cell transplantation.
Our multidisciplinary team is made up of board-certified pediatric hematologists, hematology-trained nurse practitioners and physician assistants, research staff and social workers. In addition, we offer psychological support and counseling services to help families cope with difficult social, emotional and financial issues brought on by the disease’s medical complications, especially debilitating pain crises. Texas Children’s Sickle Cell Program offers excellent ambulatory services, including outpatient blood transfusion and pain treatment programs, a sickle cell pulmonary clinic, sickle cell stroke clinic and genetic counseling, all in one location.
When it’s time for patients to transition to adult sickle cell care, we continue to provide support through our affiliation with Baylor College of Medicine.
The Sickle Cell Program conducts state-of-the-art clinical and laboratory research aimed at gaining a better understanding of the disease, preventing its complications and ultimately finding a cure. The center’s research funding is provided by government grants and the philanthropic support of a variety of community-based organizations. Children receiving care at Texas Children’s Sickle Cell Program have the opportunity to participate in several National Institutes of Health (NIH)-funded research studies led by physician scientists, providing the latest treatments for this disease. This partnership allows us to offer even more novel therapies to our sickle cell patients.
Physicians and families may call the Sickle Cell Program at 832-822-HEMA (4362) or 855-824-2972.
The Lester and Sue Smith Outpatient Clinic
Our child-friendly 36,000-square foot, state-of-the-art outpatient clinic is located on the 14th floor of the Clinical Care Center, the ambulatory care building of Texas Children’s Hospital.
The Emergency Room
For emergencies during non-clinic hours, sickle cell patients may be seen in the Emergency Department at Texas Children’s Hospital, which is open 24 hours a day, 7 days a week. In 2007, over 800 patient visits occurred due to problems related to sickle cell disease.
The Inpatient Unit
Patients requiring hospitalization are admitted to the hematology/oncology unit, a 36-bed inpatient ward on the 9th floor of the West Tower building. Patients requiring ambulatory follow-up are subsequently seen in the outpatient clinic. Patients with pain crises can also be treated in the Day Hospital, a section of the outpatient clinic staffed with a physician and a nurse dedicated to the triage of patients and their treatment.
The Pheresis Center
Over eighty patients are treated on a chronic transfusion regimen, receiving their monthly transfusions either in the Sickle Cell Center outpatient clinic or at the pheresis center. The pheresis center is under the leadership of the Director of the Dialysis Unit and overseen by an Advisory Board, the Bone Marrow Transplant Program, the Transfusion Service and the Renal Service.
Information about Sickle Cell Disease for Healthcare Professionals
Evidence-Based Management of Sickle Cell Disease: Expert Report, 2014