Health Library

Beyond DiagnosisGathering information about your child’s cancer or blood disorder diagnosis is often helpful. Your doctors, social workers, and this website provides materials that may help while your child undergoes cancer or blood disorder treatment. The health care providers are your best resource. Other good sources of information are books and pamphlets. Your social worker can guide you to these reading materials.

Learning that your child has cancer or a blood disorder is overwhelming. Someone who has never experienced it before probably has little knowledge about childhood cancer or blood disorders.

Parents say that as time passes dealing with the cancer or blood disorder diagnosis becomes easier. Some parents believe this because they understand it better and because friends and family are lending their support. Talking to other families who have been dealing with a similar disease can also be a positive step. A strong support network for children and parents facing cancer and blood disorders spans the country, with local and national parents groups, support groups for children and their siblings, organizations that deal with education, and other branches.

Our social workers can be a primary source of help. They can provide a good orientation to the clinic, are aware of special problems facing young patients and their families, provide information on how to get help from outside community agencies, and address many other non-medical issues.

About clinical trials
Acute chest syndrome in children with sickle cell disease
Acute lymphoblastic leukemia (ALL)
Acute myeloid leukemia (AML) and other myeloid malignancies
Advice from parents
Allogeneic stem cell transplantation
Alternative therapy for cancer
Arteriovenous malformation (AVM)
Basal cell carcinoma
Bleeding disorder
Bone cancer
Bone marrow harvest
Bone marrow transplantation in children with sickle cell disease
Brain complications in children with sickle cell disease
Brain tumor
Burkitt’s lymphoma
Capillary malformation-arteriovenous malformation (CMAVM)
Capillary malformation (port wine stain)
Causes of cancer
Cerebral cavernous malformation
Chronic myeloid leukemia
Clear cell sarcoma
Clear cell sarcoma of the kidney
Clinical trials
CLOVES syndrome
Conditioning regime for stem cell transplantation
Coping with a diagnosis of cancer in children
Dietary concerns during stem cell transplantation
Emotional aspects of a stem cell transplant
Ewing sarcoma
Fertility after cancer treatment
Fibroadipose vascular anomaly (FAVA)
Genetic cancer predisposition
Germ cell tumor, extracranial
Germ cell tumor, intracranial
Graft Verses Host Disease (GvHD)
Hemolytic anemia
Hepatocellular carcinoma
Hodgkin lymphoma
Inflammatory myofibroblastic tumor
Immune thrombocytopenia (ITP)
Kaposiform hemangioendothelioma (KHE)
Liver tumor imaging and interventional radiology
Liver transplantation in children with liver tumors
Long term effects of a stem cell transplant
Low grade glioma
Lymphatic malformation
Managing alopecia in children
Managing mucositis in children
Medulloblastoma (Cerebellar PNET)
Megalencephaly-capillary malformation (MCAP) syndrome
MIBG treatment
Mixed vascular malformations
Nasopharyngeal carcinoma
Neuroendocrine tumor
Non-Hodgkin lymphoma
Oncofertility for females
Oncofertility for females (Spanish version)
Oncofertility for males
Oncofertility for males (Spanish version)
Pain management and children
Parathyroid tumor
Questions to ask your child’s doctor about cancer
Returning to school after a cancer diagnosis
Rothmund-Thomson syndrome
Salivary gland tumor
Sickle cell disease
Soft tissue sarcoma
Solid tumors
Splenic sequestration in children with sickle cell disease
Stem cell transplantation in children
Sturge-Weber syndrome
Testicular cancer
Thyroid cancer
Vascular malformations and hemangiomas
Venous malformations
What is cancer?
Wilms tumor
Words to know
Why is a stem cell transplant necessary?