Gathering information about your child’s cancer or blood disorder diagnosis is often helpful. Your doctors, social workers, and this website provides materials that may help while your child undergoes cancer or blood disorder treatment. The health care providers are your best resource. Other good sources of information are books and pamphlets. Your social worker can guide you to these reading materials.
Learning that your child has cancer or a blood disorder is overwhelming. Someone who has never experienced it before probably has little knowledge about childhood cancer or blood disorders.
Parents say that as time passes dealing with the cancer or blood disorder diagnosis becomes easier. Some parents believe this because they understand it better and because friends and family are lending their support. Talking to other families who have been dealing with a similar disease can also be a positive step. A strong support network for children and parents facing cancer and blood disorders spans the country, with local and national parents groups, support groups for children and their siblings, organizations that deal with education, and other branches.
The social workers can be a primary source of help. They can provide a good orientation to the clinic, are aware of special problems facing young patients and their families, provide information on how to get help from outside community agencies, and address many other nonmedical issues. Contact your social worker to identify resources that can be of great help to you.
Acute chest syndrome in children with sickle cell disease
About clinical trials
Acute Lymphoblastic Leukemia (ALL)
Acute myeloid leukemia (AML) and other myeloid malignancies
Advice from parents
Allogeneic stem cell transplantation
Alternative therapy for cancer
Amputation (links to education and support resources)
Basal cell carcinoma
Bone marrow harvest
Bone marrow transplantation in children with sickle cell disease
Brain complications in children with sickle cell disease
Causes of cancer
Clear cell sarcoma of the kidney
Conditioning regime for stem cell transplantation
Coping with a diagnosis of cancer in children
Dietary concerns during stem cell transplantation
Emotional aspects of a stem cell transplant
Genetic cancer predisposition
Germ cell tumor, extracranial
Germ cell tumor, intracranial
Long term effects of a stem cell transplant
Managing alopecia in children
Managing mucositis in children
Medulloblastoma (Cerebellar PNET)
Mixed vascular malformations
Pain management and children
Questions to ask your child’s doctor
Rhabdomyosarcoma and soft tissue sarcomas
Salivary gland tumor
School (links to education and support resources)
Siblings (links to education and support resources)
Sickle cell disease
Splenic sequestration in children with sickle cell disease
Stem cell transplantation in children
Vascular malformations and hemangiomas
What is cancer?
Where to obtain wigs and headcoverings
Words to know
Why is a stem cell transplant necessary?